life

I’d Rather Be…

Here..

At the moment I am sat with a heat pad pressed gently onto my cheek in a vain hope that the pain in my face will stop. I ‘d rather be relaxing in a beautiful café on the shores of Lake Garda in the sunshine. I long to feel the warm sunshine on my face and look at the snow crested mountains while eating an ice-cream sundae. I wish I could eat ice-cream even just a little. This picture is poignant for me. It was taken in 2009 before I was diagnosed with Trigeminal Neuralgia. My life changed forever. It hurts to eat very hot or very cold food. It hurts to eat chewy food. It hurts to clean my teeth. It hurts to wash my face or hair. It hurts to touch my face. It hurts to put makeup on. It hurts when I smile, laugh, or sing. Sometimes I can’t even speak. My husband is pretty happy about that. Sadly it hurts when I kiss. He isn’t so happy about that. It hurts when the weather is cold, wet, windy or (worst of all) snowing. So basically… it seems like it hurts all of the time 🙂 . I would rather be anywhere else than here with a heat pad on my face.

I’d Rather Be…

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19 thoughts on “I’d Rather Be…”

  1. I’m so sorry to hear that you are in pain. I wish there was something I could do. I hope you have a good doctor and the best of care…. Pain is the pitts.. it is very draining. Get well soon. X

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    1. Thank you. It is forecast to snow tonight and tomorrow so dreading it slightly but I have to go to work. The ice-cream doesn’t really matter. A more normal life would be nice though.

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      1. I hope it is warm at work? It must be really hard trying to work if you have pain…. I really can’t imagine it. Once I went to work with a dental abscess which was very painful… In the end I was annoyed with myself… Why didn’t I just stay home? But with a chronic illness, I guess you can’t ‘just stay home’ all the time. Xx

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      2. It is warm at work I am lucky with that. When it snows we don’t take the wheelchairs out so at least I won’t have to work that hard. Yes with chronic illness we just have to get on with it.

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    1. Thank you. I am sorry if it was hard to read. I am not always so miserable. It snowed today so I wore a ski mask and goggles. It isn’t too bad. Life goes on regardless. I hope you have a great day. Thanks for dropping by x

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      1. Oh, nothing for you to be sorry for, it’s that as a reader, I sometimes comment and then hope that my comment doesn’t come off as flipant, because obviously I don’t know what you are really going through, but I would like to acknowlege it in some way. 🙂

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  2. You have been nominated for The Sunshine Blogger Award! The award is for uplifting blogs that contribute meaningfully to the blogging community. Keep up the wonderful work. (you can take a look at my blog for more details) Sahara. x

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    1. Aw no I am OK really. I have my ordinary medication which make me sleepy and dizzy sometimes. I also use cannabis oil from Holland and Barret which helps a little. Thank you for asking.

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  3. This is a very inspirational post. The fact that you write about a condition that consumes many of the joys that I take for granted in such a matter of fact and humorous way. Reading this allowed me to step back and realize the value of a smile, a kiss, being able to enjoy a wonderful meal and filled me with gratitude that I can experience them. I can’t fell you pain but I hope you can feel my gratitude.🌹💐🌞🌺

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    1. Aw that’s so sweet Mr Mel. I have only had TN for 4 years. I had it as a birthday present 8th March 2014.i spent my birthday in the accident and emergency in hospital and still managed to joke about it. I have a seriously dark sense of humour. Thankfully I only laugh about my own misfortunes not others. Thanks for reading and leaving such a lovely comment x

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